Thursday, August 2, 2012

Still Here, still hanging in...

Had a couple bad days here trying to titrate pain meds.  So please don't worry if emails/facebook messages, voicemails, texts don't get answered in as timely a fashion as usual.  That said, we (e, k and mom/maureen - local team) love your emails, visits, phone calls etc.  They keep us going and our spirits up.

Today was actually better.  We're getting closer to dialing it in despite the moving target of progression.  The other big news is that not only do I have a GREAT ramp, but I have a motorized wheel chair.  It is great for the neighborhood streets (pneumatic tires and no one has to push me :).  We've taken it for a couple "walks" and it is wonderful.  We're just dialing in things like where the best and worst (bumpy, potholed, etc) streets are.  Soon I'll be zooming around the neighborhood without breaking a sweat.

Thanks for all the support!

10 comments:

  1. Keep those wheels a rollin'. Happy that you are mobile. Love your great attitude . Hugs to the team. love R

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  2. Mmmm being the super hero you are.. may have to consider a disguise while you go into the streets on your Rohm mobile fighting all kinds of injustices.. glad your able to get out.. hope an ice cream shop is nearby. Thanks for the posts you have the greatest support team... Love always!

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  3. So glad you got to use a chemistry vocab word in your post :)
    Hope your pain is being managed well now. Your support team rocks!
    Much Love,Shelley

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  4. Julia and Shel always pictured you with a.bit of a hells angels streak in ya. We hope all those slow pokes and cats stay out of your way and you keep rockin the speedy chair. Love you

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  5. Thanks for the post! Glad to hear that things are a bit better on the pain management front. It really is a full time job! And, that’s great that you are out and about, terrorizing the animals and young children in the neighborhood. Ha ha! Only teasing. Seriously, I am happy to hear that you are able to get out of the house; that’s huge.

    Thinking of you all the time!
    Love and kisses,
    Jane

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  6. You are wonderful keeping us posted with the latest news! Great to hear you're able to zoom the neighborhood in your motorized chair - I can imagine your delight to get out and Red's enthusiasm to see you exiting down that ramp. Cheers to you and thanks to Pixar! Hope you can stay ahead of the pain and get the titrating just right. love to the local team! Ellen

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  7. Eileen,
    Thanks for your latest post. I loved the video of Red investigating the new ramp!
    So glad you were able to get out in your motorized chair. Thinking of you and your team each and every day. Wish I were close enough to offer some help. I hope you can figure just the right medication dosages to keep the pain away.
    Lots of Love,
    Kate

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  8. Thanks for the update, Eileen. Hope you are still enjoying your motorized wheel chair and continuing to titrate the pain meds well. Hooray for the local team!!!! Please tell Keith he is my hero!
    Love, ann

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  9. thinking and cheering for you always. Hope today is a good day, and I hope to drop by and visit again soon!
    Athena & CB

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  10. My most sincere wishes and prayers for you. You're a big part of the reason that I'm in college - I'll remember that.

    So Stanford, I'mma let you finish, but Ms. Rohmer is the best chemistry teacher of all time. Of all time.

    Your favorite chemistry student (of all time),
    Eric Tran
    ET

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