Tuesday, May 29, 2012

A Gorgeous Weekend and the Beginnings of a Plan

First, we had a great long weekend.  We kept it pretty lazy Saturday and did a couple things around the house.  On Sunday we took Red up to the hills for a hike at Sibley.  The wildflowers were really putting on a show.  I was feeling pretty good so we did the long loop.  Inspired by that hike we decided to head to Point Reyes the next day.  We don't go as often as we used to because there aren't many trails that allow dogs there.  So we took Red for a quick trot around the neighborhood and off we went.  It turned out to be a nice clear day at Point Reyes and we had another gorgeous hike.

That's me there, almost to the top...
Looking towards Chimney Rock.


On to the plan...My medical oncologist called today with the first step in my plan.  There is too much activity for radiation at this point, so that's out.  She is suggesting I do what is the "standard of care" in this situation which is intrathecal chemotherapy with methotrexate.  Before I start the chemo she wants me to get a lumbar puncture (Monday afternoon, woo hoo!) to see if they can detect the cancer cells in my spinal fluid.  Apparently this isn't the most reliable test, there are a lot of false negatives, but nonetheless I need to get it done as a baseline before starting anything.  After we get the results of the lumbar puncture I'll get more details on what comes next, but from the sound of it, at first they'll do another lumbar puncture to administer the chemo but eventually I'll have something called an ommaya reservoir put in by my neurosurgeon (it's like my portacath, but it'll dump the chemo into my central nervous system instead of my bloodstream).

I'll know more after the procedure on Monday.  The doctor doing it is the brain metastasis specialist and hopefully I'll get a chance to pick her brain about all this stuff.  Until then we carry on.  I've got to get this house vacuumed- it's shedding season and it's getting out of control here.

6 comments:

  1. Eileen,

    First the pictures were amazing.. what a great trail to have nearby. Our thoughts and prayers are with you for your strength and the plan to deliver great results. Just another circuit on the roller coaster, starting to not like roller coasters by the way. It was great that you are able to enjoy the weekend outside. Keep the positive vibes and enjoy these good days!

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  2. Dear Ms. Rohmer,

    My mother just told me that you have cancer again. I tried to find out how I could contact you (Google is really useful), and I hope this will reach you. I looked through this blog, and I have to admit at points I was smiling because I could just picture you saying all these things in my mind's eye. I'm amazed that you seem to have kept your spirit, despite all this. You were a fantastic teacher, quite possibly the best I've ever had. In fact, I talked to Remy the other day, and he said that the intro to chemistry at Cal is actually pretty easy after your class, something I rarely hear anyone say here, even among people who got 5's on AP Chem. Seriously, I can't stress how impressive that is given the difficulty of classes here. And it's not that difficult to believe -- I know that Honors Chemistry (especially all the stuff we did with ideal gases, formulas and visualization) helped me a ton in understanding basic thermodynamics and statistical mechanics for my physics class last year.

    Remember how you used to stop Taylor and I from playing mental chess in your class? And how we justified it by saying we were training our brains to be able to derive all the material we were missing during the test? I ended up learning everything before the test anyway haha. Good times. I haven't really played chess too much since then, but maybe I'll get back to it, it was pretty fun.

    I'm really glad to see that you're enjoying yourself. That hike looked awesome. I hope you get better really soon, for good (at least, for a very long time).

    Your former student,
    Govind

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  3. What an delightful note from Govind! It confirms what I've long suspected: that you are a spectacularly good teacher. Great fun to get a glimpse from an "insider"! Thanks for the lovely photos of your weekend hikes. I'm so glad that you and Keith (& Red if he's invited) are so well situated for fabulous outdoor spots. The lumbar puncture procedure doesn't sound like fun at all, but it would be good to get some chemo working on those nasty cancer cells in the lining of the spine. We're thinking of you and rooting for the easiest lumbar puncture procedure ever on Mon. love, Sheila

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  4. Thanks for posting, Eileen. Good to hear that you now have a plan.... I'll be thinking of you on Monday, hoping all goes smoothly and painlessly.
    Your pictures are beautiful; you and Keith live in a lovely part of the world! So glad that you were able to get out this weekend and do some hiking 2 days in a row. You are a strong woman!!!.... in many ways.
    Take good care. Love, ann

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  5. Eileen, Thanks very much for the post. Also, thanks to you Govind for your touching note! Congrats, Eileen; praise doesn’t get better than this!

    I am sorry to hear about your upcoming procedures. It sounds like a tough regime, but it’s a plan. So, I will be thinking of, and rooting for, you on Monday.

    Glad to hear that you were able to go on a gorgeous hike. Thanks for posting the pictures; they are fantastic!

    Take good care.
    Love, Jane

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  6. You guys know how to make the most of a stressful long-weekend! What gorgeous country-side and a great season with the flowers abloom. The photos are wonderful. And now you've got a plan - that's good. Monday does not sound like a fun day, but at least you'll be making progress on the attack. I'll be thinking of you. lots of love, Ellen

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