Saturday, July 7, 2012

Happy Four Chuly!

Monday was a little crazy.  We started off with a draining appointment with the psychologist.  I am not complaining about the draining part, that seems inevitable when it comes to those things.  She talked us through some stuff, cried through some stuff and gave some much needed advice.  Then it was across town to get stitches out; whoops we used dissolvable stitches, you didn't need to come in.  UGH!  At least it was the middle of our 3 appointments.  So we dorked around in the city, bought a hard drive and dropped it off at the Video Transfer Center so they could load a bunch of old home movies from Keith's family.  That was a project Keith kept meaning to do himself (for years), but it wasn't happening, so we got it happening by throwing a bit of $$ at it.  The results are WONDERFUL!  We should have done it years ago!  Then off for some Thai for lunch before going to get chemo into my brain.  Chemo was uneventful.

Tuesday we didn't have too much planned- a quick interview with a new cleaning person and then off to Cavallo Point for our luxurious little trip (a lovely gift from some parents at my school).  The interview with the new cleaning person went beautifully!  She seems like an absolute DREAM!  She said everything right and just seems like a genuine person I'd like to deal with.  Cavallo Point was beautiful and luxurious and very treatful.  It's a former military installation that's been totally redone and converted to a nice hotel complex at a beautiful spot right near the base of the Golden Gate Bridge, on the Marin side.  I took several long soaks in a giant bathtub in our room.  We walked the grounds and scoped out where to watch the SF fireworks show.  I was feeling pretty tired from the chemo but not too terribly affected.  Lots of naps while Keith plinked on his ukelele.  Later, we walked back down to the water's edge to watch the fireworks (spectacular!).  We were freezing by the end of it but warmed up nicely on the hike uphill to our room.  I'm more wobbly and my legs are weaker so I've been using hiking poles most of the time.  It's hard to know if the weakness/balance issue is from growing tumors, or a side effect of the previous radiation treatments, or it could be a side effect of my pain meds, and most definitely the steroids have something to do with it.  Also probably related to my meds is my continuing urinary issues.  I'm rockin' the poise pads these days (which is not fun but way better than a catheter and a leg bag).  Again, that could be due to meds, or due to tumors....we just don't know.  And frankly, there ain't much to be done about it at this point anyway.  Oh, and also speaking of steroids, my face is GIANT now (again, urgh!).  My reflection freaks me out.  Thank goodness Keith loves me anyway.  I hate being on steroids!!

My sister Meg arrived on Thursday night for a 5 day visit.  She's staying overnights at the cottage that my mom rented in Orinda (about 20 minutes from here).  It's great to have her around- she just made us a huge batch of mac-n-cheese for our freezer.  MMMmmmmmmm........

Back to the cleaning person, we liked her so much that we signed on to her roster and had our first clean yesterday.  She did a great job and we're both happy to have found someone we like and who is kind and a darn good cleaner to boot.  It's one less thing to be stressing about.

Next up: Monday I have an appointment with a symptom management doctor who comes highly recommended.  We're hoping he can evaluate my drug list and maybe make some adjustments so I'm more comfortable with less side effects.  I'm always a little nervous for a new doctor, but I think this will be a good addition to my team.





8 comments:

  1. Glad the 4th was so spectacular for you, that was a nice thought of the school parents. You mentioned cleaning, there is a breast cancer charity that works with cleaning services to help breast cancer patients. The link to apply is : http://www.cleaningforareason.org/user/start. It was spotlighted on Opra a few years back.

    It is good for Meg to be able to make it out for the week, sure that with all the tough appointments it is good to see her there in your corner. Enjoy Meg's visit!!

    And puffy face or not.. your loved by us all!!

    Thoughts and prayers for you.. wished we could do more!

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  2. Just checked out Cavallo Point and I now see why it would be such a spectacular place from which to watch the fireworks. Wow, what a view! Your spunk and style are inspirational - great idea to use the hiking poles, good that the poise pads help avoid the catheter, just post a large photo of your gorgeous self on the mirror and ignore the puffy face that belongs to someone else. It’s wonderful you have access to such a specialist as a symptom management doc; I hope he’s helpful. We’re thinking of you. love, Sheila

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  3. Dear Eileen,
    Thanks for the update and the pictures. So glad you and Keith were able to enjoy the 4th in style and see the fireworks.
    You are a strong and resourceful woman, and we love and admire you!
    Enjoy Meg's visit!
    ann

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  4. Thanks for the detailed and newsy post! Wow, Cavallo Point does look fabulous. What a nice gift! Glad to hear that you had a good time- enjoying the amenities and sights. I can imagine that it must have been a great place to view the SF fireworks (even despite being nippy!).

    It sounds like you and Keith have been busy. That’s great that you found a cleaning person that you feel comfortable with and who will do good work. The two of you continue to amaze and inspire all of us!

    Enjoy Meg’s visit!

    Take good care.
    Love, Jane

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  5. Eileen,
    Thanks for the update and the photos. We're always thinking about you and Keith and are happy to get news. Glad to hear that you had the energy to go to Cavallo Point. That is quite a setting right there by the Golden Gate bridge! And it looks like a real hike up that hill. You're one strong gal to be able to make it up. I didn't realize how chilly SF evenings are.
    Congrats on finding a pleasant and competent cleaning person.
    We'll be thinking of you tomorrow, hoping that the symptoms managing doc is able to be helpful. Lots of love, Ellen

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  6. Eileen,
    So glad that you and Keith went to Cavallo Point for a quick mini vacation; looks like a wonderful place to relax and see the fireworks!
    You are truly inspiring the way you're able to solve the challenges (whether with ski poles or poise, etc) and keep doing some of the things that you and Keith want to do.
    We'll be thinking of you tomorrow, hoping that you find the symptoms management doctor helpful.
    Also, congrats on finding a cleaning person you like!
    Enjoy the rest of Meg's visit.
    Love,
    Kate & Doug

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  7. What a good idea to hire a cleaning person – that sounds like a slice of luxury I’d very much like to try. Good luck with the appointment, I hope the doctor was able to help.

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  8. Glad you enjoyed Cavallo point! Thinking of you guys..
    Best,
    Athena

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